Family Focus Edition – Upcoming Events
Muscular Dystrophy Lab Day/Open House
Saturday, Feb. 9, 10 a.m. to 1 p.m.
Paul and Sheila Wellstone Muscular Dystrophy Center
Academic Health Center, Fourth Floor
University of Minnesota
Visit the Wellstone Muscular Dystrophy Center to tour the lab, meet the staff, and get to know the researchers who are working toward a cure for muscle diseases. Kids and families can take part in fun “research experiments.” Enjoy free parking and refreshments. For more information, call 612-626-0822 or email firstname.lastname@example.org.
Muscular Dystrophy Association: Muscle Walk
Saturday, March 9, 7:45 a.m. to 9:30 a.m.
Mall of America
This event brings people together in a fundraising effort to defeat muscle disease. To register, visit www.musclewalkmda.org/2013twincities
Epilepsy – Family Education Day
Saturday, April 13, 9:30 a.m. to 2 p.m.
451 Lexington Parkway North
St. Paul, Minnesota
Gillette and the Epilepsy Foundation of Minnesota invite you to learn more about a child’s stages of development and the effect of those stages on epilepsy. You’ll learn about living well with epilepsy and hear about these topics:
- Life Stages and Epilepsy: Fostering Self-Efficacy Across the Life Span—Jen Maytum, doctor of nursing practice.
- The Importance of Sleep in Children With Underlying Neurological Conditions—Laurel Wills, M.D.
- Helping Children and Families Adjust to Seizures: What Parents Should Know—Katherine Buhrke, Ph.D.
- Epilepsy Foundation of Minnesota: Resources and Report
This event is free and includes a box lunch. For more information, email Nikki Baker at email@example.com. To register, email firstname.lastname@example.org.
Light Up the Night Gala
Saturday, May 4, 6 p.m.
Minneapolis Marriott southwest
5801 Opus Parkway
Enjoy dinner, silent/live auctions and entertainment—featuring composer and guitarist Billy McLaughlin—while you support people who have epilepsy. Tickets are $100 per person and sponsorships are available. To learn more or order tickets, visit the Epilepsy Foundation of Minnesota website at www.efmn.org
Parent Connect Programs
Twin Cities; Fargo, N.D.
For information about Parent Connect programs in the Twin Cities and Fargo, N.D., or to learn about family events throughout Minnesota, visit the Epilepsy Foundation of Minnesota website at www.efmn.org.
Rett Syndrome Caregiver Education Day
Saturday, April 20
Gillette staff, University of Minnesota researchers, and the Minnesota Rett Syndrome Research Association will hold their sixth annual conference in April. It’s devoted to the latest in supportive therapies, research and education to improve the lives of people affected by Rett syndrome. Watch for details in next month’s Family Focus Edition.