My pregnancy was healthy and normal. An ultrasound said we were having a girl! My husband and I were on vacation four hours from home. We spent hours in our boat talking about how we would take our daughter fishing. I was 23 weeks along – just over halfway. But on the last day of vacation, I went into labor. I was airlifted to a hospital with a high-level NICU. And the baby was born. It was not breathing.
Doctors were working frantically. Everyone was crying. And then I heard the most amazing sound – a tiny little cry! The baby was alive! My husband was able to cut the cord. That’s when he noticed that we had a boy instead of the girl we were expecting! Jaxson surprised us by coming 17 weeks early, and he has kept us on our toes ever since.
Jax was the youngest baby in that NICU…ever. Doctors gave him a 4-percent chance of healthy survival. But he proved from day one that he was here to stay. Our little 1-pound, 8-ounce fighter was the “feisty” baby. He was a wiggler and was drugged so he wouldn't pull out his IVs. He extubated himself four times. He had significant trouble with his insulin levels and received six blood transfusions in the first three weeks of life. Jax had aggressive and severe ROP in both eyes, which required Avastin injections and laser eye surgery. He is still monitored closely, but so far his eyes look great!
After 93 days in the NICU, Jax came home. He was released an entire month before his due date! This is unheard of for 23 weekers. His pediatrician calls him “a superhero” every time he sees him.
Jax has done very well, but he still faces some challenges. He’s had four surgeries, with another one scheduled for this fall. He struggles daily with chronic lung disease. We have a million doctor appointments, but the main thing we do is love each other! Jax just turned 14 months old and after months of physical and occupational therapy at Gillette Children's Specialty Healthcare, our little buddy celebrated by pulling himself up to standing! He is always on the go.
Jax has the amazing power to lift your spirits anytime he’s in the room. His genuine smiles, open-mouthed kisses, and friendly “talks” make every day special. Jax is also independent. He does his own thing and goes his own way. He doesn't fit the mold and defies the odds every single day. Jax is also very adaptable. Jax is the most laid–back kid. He goes with the flow and does it with a smile on his face. Jax had oral aversion problems when we introduced solid food. After only three months of therapy, he will now eat whatever you put in front of him. He faces challenges head on: show him once, and he figures out a way! Jax is a hilarious kid – he makes us laugh everyday with his funny faces and goofy songs. He loves music and always moves to the beat. Some of his favorite things are going for walks in his stroller, reading books, playing with his cousins, and meeting new people. He’s so friendly – he has a smile for everyone he meets. You’d never know by his happy personality that he spent three months in the hospital fighting for his life!