Our son Alex (pictured right with brother, James and sister, Stella) was diagnosed with left-hemiplegic cerebral palsy at 14 months old. We were unsure of what that would mean for Alex and for our family, but we felt confident in our hometown physician. Alex was on a great path, and he improved by leaps and bounds in the year after his diagnosis. Unfortunately, less than a year later, her career took her away from the area, and from us. We knew our care plan with Alex would be a long road, and we didn’t feel comfortable leaving that up to chance. We were beside ourselves with worry.
We reached out to the exiting physician, pleaded with her to give us some guidance even though Alex was no longer her patient. She gave us the best advice we could have ever gotten. She said, “You’ll have to make the 5-hour trip to see someone there, but if he were mine, I’d take him to Gillette Children’s Specialty Healthcare in St. Paul.”
With that, we made the first call and scheduled a consult with a doctor at Gillette. From the minute we walked into the gorgeous facility and met the smiling staff and helpful nurses, we knew that we had found the place for us. Our doctors at Gillette, Marcia Ward, M.D., and Stephen Sundberg, M.D., take such amazing care when working with Alex and our whole family. They work around activities (such as travel and new babies and football games) to make sure that he gets the care that he needs, while helping us maintain a normal family life. Alex has had inpatient and outpatient surgeries at Gillette, he’s participated in gait lab analysis (so cool!), and he’s utilized the Assistive Technology Department (ATD) Mobile Outreach services (Joel is amazing!) for his ATD needs. It’s amazing to us how all of this care comes together so seamlessly.
Now, at 12 years old, Alex is a strong, big kid. He is resilient, courageous, fun...and just downright awesome. His differences may make things more difficult, but he never lets them slow him down. He is active in sports (aspiring to take our racquetball community by storm this year) and is "that kid” at school who everyone loves—teachers and kids alike. He's an A student in seventh grade and a wizard with anything engineering. (He has a small fortune invested in the coolest LEGO collection you've ever seen!)
We wouldn’t think of going anywhere else. There are new providers in our area. New clinics and rehab facilities pop up all the time. But regardless of the convenience factor a closer clinic may offer, we know Gillette is the best place for our son. The care and exceptional services we receive make the trip a no-brainer! Thank you Gillette for taking such great care of us!
Editor's note: Become a fan of the Cerebral Palsy Resource Group on Facebook to connect with others and receive support from the cerebral palsy community.