Kids Health Matters
Tag: cerebral palsy

They came to Gillette Children's Specialty Healthcare with twice the hope. Twice the dreams. Twice the determination.The Bracho Diaz family left their native Venezuela eager for another round of expert care for their 10-year-old twin daughters Maria de los Angels and Maria Antonieta. Yes, identical twin sisters who share the name Maria and a diagnosis of spastic quadriplegia cerebral palsy.

"Every step Sophia takes is a testament to the countless dedicated individuals who made it possible," says her mother, Susan Slinkard. Sophia and her family traveled from Arkansas to Minnesota for major neurosurgery aimed at reducing Sophia's spasticity.

Rehabilitation therapy helps patients learn how to maximize their abilities and become familiar with new ways of moving. Locomotor training, a form of walking therapy that involves body weight support, can help eligible patients increase function in their lower extremities and improve their mobility.

There are few moments in life as exciting and anxiety inducing as the day you have your first child, but for Andrew Bailey and his wife, Amanda, things were a bit more complicated. Amanda was home in Connecticut getting ready for her baby shower. Andrew, a pitcher for the Boston Red Sox, was in Seattle for an away game.

The hospital can be a scary place for anyone, especially a child, and no matter how nice the staff is or how thoughtfully the clinical spaces are designed, it’s usually difficult for a patient to forget they’re in one. At Gillette Children’s Specialty Healthcare, that’s no longer the case.

Mason is a happy five-year-old with a contagious smile and a laugh that brings a smile to your face. Diagnosed with cerebral palsy, Mason has attended Gillette for occupational, physical and speech therapies to help him strengthen his muscles and vocal skills. Learn how Mason and his family are showing their gratitude for Gillette this summer!

When Jenna Robinson was born, she only weighed three pounds and doctors told her parents she’d never be a “rocket scientist.” Now 28, she holds a Master’s degree in social work and has dedicated her life to helping individuals lead more independent lives.

Wes Jackson is a thoughtful, kind and inquisitive kid. He also has cerebral palsy, but he won't let that (or anything else for that matter) get in his way. Get to know Wes and his family, you'll be glad you did.

Learn about how Jennifer and her son Nick, a Gillette patient who has cerebral palsy and epilepsy, came up with an idea for a part-time business making dog treats and turned it into a reality that they hope will provide employment opportunities to other young adults who have disabilities.

Laney and Lilah are feisty, happy twin sisters. They share a diagnosis of cerebral palsy, but that is just one aspect of their lives. More importantly, they dance, they laugh and occasionally throw things.

Cassidy and her mom, Darcy, are two of the biggest fans of the University of Minnesota women's volleyball team. They're excited about the NCAA Division I women's volleyball tournament at Target Center in Minneapolis. While they're disappointed the Gophers will not appear in the NCAA tournament, they're proud of what the team accomplished this season. Cassidy has quadriplegic cerebral palsy and her limited use of her arms and legs means is can be difficult to stand and cheer for her team--until Gillette helped make her dream come true.

Learn how a selective dorsal rhizotomy and single-event multilevel surgery (SEMLS) Gillette, along with her intrinsic determination, has led to newfound independence and confidence for Kaidyn.

It's rare for a singular event to bring so much joy and meaning to so many individuals and organizations, but Gillette Children's Specialty Healthcare's celebration of the 3rd Annual Mauer and Friends Kids Classic, did just that. The event took place on a perfect, June day, and 25 Gillette patients and their families had the experience of a lifetime down on the grass of Target Field.

In the United States, approximately one in twenty-five children is considered “medically complex.” What this means is that these are individuals who have multiple chronic and severe health conditions.

When I work with my patients, something that comes out over time is that I understand the profound stress and anxiety that can come with caring for a child who has complex medical needs. I know this because I’ve devoted my career to working with patients who have disabilities, but also because I’ve lived it.

Gillette Children's Specialty Healthcare has several members of our staff who are moms to Gillette patients. These devoted parents and employees help make Gillette a special place.

On April 7th, 2018, I had the incredible opportunity to participate in the Minnesota Miss Amazing pageant. I was lucky enough to learn about this event from a friend who became involved in the past, and had expressed that the event was an awesome experience for her and her family.

“I don’t think it would surprise anyone to learn that a lot of children love dogs,” says Emily DeBreto. “While we’ve had volunteers bring in therapeutic dogs at the hospital for comfort, we wanted to get our dogs more involved with the actual functional aspects of the therapy we’re providing.”

"This kid is without a doubt my hero. I am without a doubt his biggest fan," says Ross Carothers of his son, Mikey, who has schizencephaly. Learn how the generosity of donors has supported Mikey's family and how they've given back in return.

Becky Hamilton can’t help but get a bit emotional as she prepares to hang up her scrubs after 40 years as a Gillette Children’s Specialty Healthcare nurse. She’ll freely tell you that when you devote so much of your life to an organization, your colleagues become like family. This goes for your patients as well.

As he ambles down a long hospital hallway, smiling with every step and practically daring you to do the same, it can be pretty easy to forget that this wasn't supposed to happen. Mateo Arcos was never supposed to walk.

In 2016, Connor Church finally went to his first Minnesota Twins baseball game. Even more exciting than that: His doctors at Gillette deemed him a Gait Lab Graduate. Meaning after more than 12 years and 30 procedures, Connor would spend the rest of his summers surgery-free.

Rebecca Pierce, the mother of a Gillette patient, speaks out about the importance of protecting Medicaid for children who have disabilities.

Maia Gochez pursues anything that catches her fancy: horseback riding, cute sandals, traveling the country. And she’s courageous enough to overcome anything that might stand in the way—even her cerebral palsy diagnosis.

Pain affects all aspects of life, but for many of us, it’s an abstract concept. But, for a moment, imagine what it would feel like to experience chronic pain for an entire month. Start with that, but now expand it out to a year—or maybe even, every day of your life.

Katie Allee takes Advanced Placement classes. She’s 15, and she’s a straight-A student. Her mind? It’s all there, and she’ll tell you as much. But when it comes to her body physically, for much of her life, she’s had difficulty.

The emotional roller coaster that follows a cerebral palsy diagnosis never goes away. But Ami Hagen, our guest author and mother of Adli, a Gillette patient, says the ups are so worth the downs. Ami tells us about her joys, her worries, and raising a daughter with unwavering spirit.

"If there is anything that I want people to understand, it’s that parents who have children who have disabilities want what any parent wants for their child."