Patient Stories — Moving Families Forward


Evie’s Story: Rett Syndrome

For kids like Evie, who have Rett syndrome, the condition—often misdiagnosed as autism—affects the ability to move, speak and communicate. Now, thanks to Gillette, she can communicate with her family.

Read More »
Hayley’s Story: Birth Brachial Plexus Injury

On the day Hayley was born, a nurse noticed that the infant wasn’t moving her right arm or shoulder. When an X-ray ruled out the possibility of a broken collarbone, doctors diagnosed Hayley with a birth brachial plexus injury.

Read More »
Abbi’s Story: Cerebral Palsy

Kari and Kyle often describe their 16-year-old daughter as a courageous and adventurous girl. “Abbi loves to do anything she possibly can,” says Kari. Abbi participates in the activities she loves despite having diplegic cerebral palsy.

Read More »
Joshua’s Story: Scoliosis

On Nov. 30, 2013, Julie and Bob adopted Joshua and brought him home to their family in Minnesota. But Joshua was born with several medical issues, the most severe of which was congenital scoliosis.

Read More »
Ethan’s Story: Duchenne Muscular Dystrophy

Ethan is a caring and compassionate boy who loves all animals—especially his dog, Charley. One month before his fourth birthday, however, Ethan and his parents received a diagnosis that would change their lives forever.

Read More »
Michael’s Story: Apert Syndrome

Shortly after Michael’s birth, doctors diagnosed him with a rare condition called Apert syndrome. Michael understands that we are all different, but being different isn’t what defines him as a person.

Read More »
Kaeli and Lily’s Story: Cerebral Palsy

Sisters Kaeli and Lily share an incredibly strong bond—despite the fact that Lily is unable to communicate verbally. She was diagnosed with a severe form of cerebral palsy as an infant.

Read More »
Taylor’s Story: Osteogenesis Imperfecta

When Taylor was 11 months old, she broke her femur. A fall, combined with a faint “popping” sound and Taylor’s cries were enough to tell her parents, Kim and Ethan, that something was wrong.

Read More »
Nolan’s Story: Chiari Malformation

A naturally curious kid, when 7-year-old Nolan isn’t busy asking questions, he’s enjoying music, dancing and drawing. In 2012, however, then 4-year-old Nolan didn’t feel like himself. To his mother, he was almost unrecognizable.

Read More »
Michael’s Story: Craniosynostosis

Michael is a happy, giggly and curious 1-year-old who enjoys finding new things to explore and climb. But when Michael was born, his parents immediately noticed that his head shape appeared different than their other children.

Read More »
Austin’s Story: Deformational Plagiocephaly

Austin is an adorable 6-month-old who loves practicing “tummy time” alongside his dog Buster and reading books before bedtime. At less than 1 month old, his mom noticed some early signs that Austin might have torticollis.

Read More »
Dylan’s Story: Cerebral Palsy

Dylan is a kindhearted child who makes friends easily. He’s also hardworking and strong-willed—qualities that have aided him through years of treatments and surgeries to improve his mobility after a diagnosis of cerebral palsy at 3 years old.

Read More »
Shivani’s Story: Brain Injury

When 14-year-old Shivani was struck from behind by a double snow tube moving at high speeds, she sustained a direct hit to her skull. The impact left her unconscious.

Read More »
Maya’s Story: Epilepsy

When people see Maya, they see a sweet and affectionate middle-school student. Looking at all that Maya accomplishes today, many people might not realize she has a condition called epilepsy.

Read More »
Cora’s Story: Spina Bifida

Cora is a spunky, high-energy kid who loves to “help” her mother, Paula, with anything and everything she can. But before Cora was even born, at just 20 weeks into the pregnancy, Paula discovered her daughter would have a complex disability called spina bifida.

Read More »
Ellie’s Story: Cerebral Palsy

Today Ellie is an on-the-go middle-schooler who loves swimming, reading, riding her scooter and playing softball. But at one time it wasn’t quite as easy for Ellie to be so active.

Read More »