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Craniosynostosis: Understanding and managing the condition

Craniosynostosis is a condition in which one or more of the fibrous joints (sutures) between the bones of a baby’s skull close prematurely, before the brain has finished growing. This early fusion affects the shape of the head and the face, and may result in increased cranial pressure, which can impact brain growth. Craniosynostosis surgery—called cranial vault remodeling or frontal bone advancement cranial vault remodeling— corrects craniosynostosis, creating a more normal head shape and giving a child’s brain room to grow.

The most obvious symptoms of craniosynostosis include abnormal skull shape, abnormal forehead shape, or asymmetrical eyes or ears.

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Keegan was born with sagittal craniosynostosis- notice the elongated head shape.

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At 4 months of age, Keegan had surgery to repair his craniosynostosis.

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Today Keegan proudly shows off his scar as a reminder of how strong he is.

You can read Keegan’s story and other stories of children and adults who have craniosynostosis in the Gillette Children’s Healthcare Press book, Craniosynostosis: Understanding and managing the condition: A practical guide for families.

Gillette is one of the region’s leading facilities for treating craniosynostosis. Your family can feel confident in our knowledge and expertise. Our surgeons perform more procedures to correct craniosynostosis than any other surgeons in the region. You’ll work closely with the nation’s top pediatric specialists in craniofacial and plastic surgery and neurosurgery in a family-centered environment. Visit our Craniofacial and Plastic Surgery page to learn more and make an appointment at Gillette.

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