Ethan Johnson was diagnosed with a rare condition as an infant. His parents were told he may never walk without assistance. Now seven years old, not only does he walk, he flies out on the ice. Read Ethan's story here.

Figuring out if your child has a rare disease is a concerning and challenging puzzle for parents.Two members of the Gillette team, pediatric neurologists Randal Richardson, MD, and Jamie Eskuri, MD, say finding answers and guiding families through a rare disease diagnosis and care plan is one of the most rewarding parts of their jobs.

When Isabella Gregory, 11, received a diagnosis of juvenile idiopathic scoliosis in 2019, it was a shock to say the least. Read about the unique surgical procedure that got Isabella back to her life and activities just 6 weeks later.

At the 2021 Annual Meeting of the International Perthes Study Group (IPSG), organizers announced that Gillette is second in the world in its enrollment of Perthes patients into IPSG studies.