In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people. Whether the underlying condition has a name or is some as-yet un-named genetic syndrome resulting in a life-threatening condition, the disease is far from “rare” for families who are affected. Even though some rare disorders affect perhaps only 50 children nationwide, to families, it is present every day. Take a look at this infographic to learn a little more.
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