Kids Health Matters
Topic: My Gillette Story

As loud music filled the adjoining hallways near the Neurosciences unit at Gillette Children’s Specialty Healthcare, passersby could be forgiven if they were a bit confused. The atmosphere was festive and there was good reason for it. At long last, James Bostic, 17, was able to go home. He had been in the hospital for 15 months.

Every now and again, I write a new letter to my son, Landon. It’s my testament to him. To who he was, to who he is, and to who he could someday be.

On April 7th, 2018, I had the incredible opportunity to participate in the Minnesota Miss Amazing pageant. I was lucky enough to learn about this event from a friend who became involved in the past, and had expressed that the event was an awesome experience for her and her family.

"Every step Sophia takes is a testament to the countless dedicated individuals who made it possible," says her mother, Susan Slinkard. Sophia and her family traveled from Arkansas to Minnesota for major neurosurgery aimed at reducing Sophia's spasticity.

Parents worry. Parents worry about their child’s growth, development, friends, school, future. It’s a universal truth, baked into our biology. When a child is diagnosed with special needs, however, a parent’s worry can snowball into anxiety. That's what happened to me, but here's what I did.

Project SEARCH combines classroom instruction and career exploration through hands-on training for students who have disabilities. This is Gillette’s first year participating in the program, through a partnership with the White Bear Lake Area Schools, and the interns have progressed in leaps and bounds.

When Jenna Robinson was born, she only weighed three pounds and doctors told her parents she’d never be a “rocket scientist.” Now 28, she holds a Master’s degree in social work and has dedicated her life to helping individuals who have disabilities lead more independent lives.

Louie Romero is a smiley kid that simply can’t help the fact that he is irrepressibly charming. It's Louie's personality that makes an impression when you meet him. The fact that he is in a wheelchair and has cerebral palsy ranks much lower on the list.

Winter came back with a vengeance yesterday, and while every child should be able to have fun sledding, it’s more dangerous than many assume. Find out how to stay safe on the slopes this winter.

You know, there might be nothing more Minnesotan than lacing up a pair of skates and heading out to the rink. “You bet, you’d better believe it,” says Tony Lang of Loretto, Minnesota. “I grew up playing hockey my whole life. It’s a family tradition. In fact, when we had kids I built a rink in our backyard.”

The hospital can be a scary place for anyone, especially a child, and no matter how nice the staff is or how thoughtfully the clinical spaces are designed, it’s usually difficult for a patient to forget they’re in one. At Gillette Children’s Specialty Healthcare, that’s no longer the case.

There are few moments in life as exciting and anxiety inducing as the day you have your first child, but for Andrew Bailey and his wife, Amanda, things were a bit more complicated. Amanda was home in Connecticut getting ready for her baby shower. Andrew, a pitcher for the Boston Red Sox, was in Seattle for an away game.

Most parents would tell you that having a child changes your life in ways you never could have imagined. That certainly was the case for my husband, Mike and me. Our daughter, Peyton, is now 6 years old, and it’s been a journey of hope, faith and love.

Marlowe Mary Madich is eager to smile, yet surprisingly stingy with her giggles. But her penchant for dancing along to “Shake Your Groove Thing” wins over just about any room pretty rapidly.

“I don’t think it would surprise anyone to learn that a lot of children love dogs,” says Emily DeBreto. “While we’ve had volunteers bring in therapeutic dogs at the hospital for comfort, we wanted to get our dogs more involved with the actual functional aspects of the therapy we’re providing.”

Even nine years later, George Jamison clearly remembers the moment. He was with his older brother, Jack, at summer camp, having the type of fun that only 8 and 10-year-olds can. Then everything went black. When he awoke, a lot had changed.

Becky Hamilton can’t help but get a bit emotional as she prepares to hang up her scrubs after 40 years as a Gillette Children’s Specialty Healthcare nurse. She’ll freely tell you that when you devote so much of your life to an organization, your colleagues become like family. This goes for your patients as well.

Your brain isn't like your arm. You can’t see it or touch it. It’s not really tangible, which means that we rarely spend time thinking about the thing that makes us think, unless we have to. This is what those who experience a TBI go through.

Rebecca Pierce, the mother of a Gillette patient, speaks out about the importance of protecting Medicaid for children who have disabilities.

Tall, red-haired and boisterous, it’s not a surprise to learn that Connor plays on the football team back in North Dakota, or that he’s pretty popular.

Kelsey's attitude is so affecting, she says that most people don’t notice at first. Kelsey was born with a radial club hand, and her left arm is significantly shorter than her right. This means that when she’s instructing yoga—perhaps the most public of exercises—she’s essentially doing most of it, one-handed.

Katie Allee takes Advanced Placement classes. She’s 15, and she’s a straight-A student. Her mind? It’s all there, and she’ll tell you as much. But when it comes to her body physically, for much of her life, she’s had difficulty.

Gillette volunteer and graduate student, Kalpana Parsons, says volunteering is her "opportunity to spread goodness in the world."

"If there is anything that I want people to understand, it’s that parents who have children who have disabilities want what any parent wants for their child."

If you want to know how a former guard to the British Royal Family wound up racing his sailboat to help Minnesota children who have disabilities, follow along below.

“They almost didn’t notice it at first,” Karey Hall says. When her daughter Katelyn was born, her left leg was missing two toes and had an abnormal, rainbow-like bend to it. “No one at the clinic had ever seen anything quite like it before.”

84-year-old George Fedor is a storyteller. But the one story that George couldn’t tell had to do with one question: What is wrong with the left side of my body?

Small, gregarious, brimming with boundless energy and a mischievous smile, 4-year-old Emmy Veenis is the type of kid people tend to remember. But Emmy started having headaches.

Avery, a sixth grader who has cerebral palsy, recently had the opportunity to showcase some of her favorite back-to-school fashions to thousands when she modeled for the Mall of America's 2016 Back to School Look Book. Learn how the experience helped build Avery's confidence and how care at Gillette has helped her thrive.

When Willi fell off his longboard, sustaining a life-threatening brain injury, what followed was the night all parents fear. Hear from his mom, Mary, about the recovery she calls "miraculous" and the doctors and nurses she describes as "amazing."

Even after an injury heals, sometimes an imprint of it can remain. How this happens varies from person to person. But for some individuals, like Ali Tokkesdal, it manifests in the form of chronic pain. “I couldn’t walk. It felt like my body had turned against me, like it was haunted,” says Ali.

When Stacy Soman’s son Hunter started being bullied consistently last year, this question came up more and more. “When your kid starts coming home with bruises, it’s hard not to say: ‘You know what, maybe you should hit back, and they’ll leave you alone.’ Many children would take that advice, but not Hunter."

As a three-year-old at the pediatrician’s office, I did not know what was going on. But I remember this day distinctly. I remember my doctor extending, bending, and checking all of my joints.

Our son Alex (pictured right with brother, James and sister, Stella) was diagnosed with left-hemiplegic cerebral palsy at 14 months old. We were unsure of what that would mean for Alex and for our family, but we felt confident in our hometown physician.

My daughter Livie was born with many congenital anomalies.  She has hydrocephalus, absent radius bones on both arms, scoliosis, cleft lip and palate, and mild kidney issues.