Kids Health Matters
Topic: Neurology and Neurosurgery

Gillette Children’s Specialty Healthcare is ready to help as the Centers for Disease Control and Prevention (CDC) warns that 2020 could be another peak year for cases of acute flaccid myelitis (AFM)—an uncommon but serious neurological condition that mostly affects children. The polio-like condition tends to peak in the fall months every other year. The last surge of AFM was in 2018 where more than 200 cases were diagnosed across the U.S., according to the CDC.

At Target Field, every Sunday is Kid’s Day and on a beautiful summer day in August of 2019, Samuel Anastos scored the first honorary run of a Minnesota Twins game. It was a joyous moment made all the more meaningful because there was a time in Sam’s life when his parents questioned whether he would learn to walk or talk, much less run.

The U.S. Food Drug Administration’s (FDA’s) recent approval of a new oral medication to help treat spinal muscular atrophy (SMA) is being hailed as a “game changer” by Gillette Children's Specialty Healthcare neurologist, Randal Richardson, MD, MMS. “The main message I want to get out to people who have SMA and their families is—many of you now have options and the power to make a choice for yourself,” Richardson says.

The Centers for Disease Control and Prevention (CDC) is warning parents and medical professionals that 2020 will be another peak year for cases of acute flaccid myelitis (AFM) a rare, polio-like neurological condition that affects mostly children. Gillette Children's Specialty Healthcare is ready to be an important center for AFM care and rehabilitation when the outbreak is set to peak this fall.

In all the ways that matter, Peter is your typical 8-year-old. He’s a protective older brother to his younger sister Katie, loves cars, sports and Star Wars. He’s easy to smile, quick to laugh and brings joy to all who meet him. When you’re in Peter’s presence, the fact that he has cerebral palsy and can’t speak, quickly becomes an afterthought.

Matthew suffered a traumatic brain injury 15 years ago. After the treatment at Gillette that saved his life, he’s had a singular goal: To live every day, better and stronger. As he says, “It’s not about what I lost, it’s about what I’m getting back.”

Many families and providers are taking advantage of the newly expanded virtual care appointment options at Gillette Children’s Specialty Healthcare. During the “stay at home” orders due to COVID-19, Gillette continues to focus on ensuring families are safe and have access to our expert medical care.Pediatric neurologist, Randal Richardson, MD, is seeing patients via virtual care, when clinically appropriate, and he's excited about how technology makes it more convenient for his patients.

“It’s not an exaggeration to say deep brain stimulation (DBS) surgery at Gillette changed Sam’s life,” marvels his mother Coleen Wedig. Sam Wedig, 16 and his mother first traveled to Gillette Children’s Specialty Healthcare from Des Moines, Iowa in 2015 seeking help for cerebral palsy and dystonia. They’re passionate about sharing their story in the hope they can help other families dealing with similar medical challenges.

"Every step Sophia takes is a testament to the countless dedicated individuals who made it possible," says her mother, Susan Slinkard. Sophia and her family traveled from Arkansas to Minnesota for several major surgeries aimed at reducing Sophia's spasticity.

Going sledding is ridiculously fun. It can also be dangerous. Wearing a helmet makes it safer.

As loud music filled the adjoining hallways near the Neurosciences unit at Gillette Children’s Specialty Healthcare, passersby could be forgiven if they were a bit confused. The atmosphere was festive and there was good reason for it. At long last, James Bostic, 17, was able to go home. He had been in the hospital for 15 months.

Owen Nei is 10 years old, an avid hockey and baseball player, and a young man who lights up every room he’s in with his positive, irrepressible attitude. Given how his life started out, the fact that he’s even here, much less doing all of these things, is nothing short of a miracle.

There are few moments in life as exciting and anxiety inducing as the day you have your first child, but for Andrew Bailey and his wife, Amanda, things were a bit more complicated. Amanda was home in Connecticut getting ready for her baby shower. Andrew, a pitcher for the Boston Red Sox, was in Seattle for an away game.

When Jenna Robinson was born, she only weighed three pounds and doctors told her parents she’d never be a “rocket scientist.” Now 28, she holds a Master’s degree in social work and has dedicated her life to helping individuals lead more independent lives.

Wes Jackson is a thoughtful, kind and inquisitive kid. He also has cerebral palsy, but he won't let that (or anything else for that matter) get in his way. Get to know Wes and his family, you'll be glad you did.

Laney and Lilah are feisty, happy twin sisters. They share a diagnosis of cerebral palsy, but that is just one aspect of their lives. More importantly, they dance, they laugh and occasionally throw things.

Take a moment and picture your best friend. They may come into our lives at different times, but everyone has one. How we meet them doesn’t really matter. What matters is finding that one person who truly understands you. That person you can be vulnerable with, who shares in your joy and successes, and helps you through life’s challenges.

Every now and again, I write a new letter to my son, Landon. It’s my testament to him. To who he was, to who he is, and to who he could someday be.

“Knowing that Gillette is a PPMD-certified Duchenne Care Center means the world to us because we know for certain Tyler’s getting the specialized care that he needs," says his mom, Marilyn. Meet Tyler and learn about his family's "game plan" to tackle Duchenne muscular dystrophy.

Louie Romero is a smiley kid that simply can’t help the fact that he is irrepressibly charming. It's Louie's personality that makes an impression when you meet him. The fact that he is in a wheelchair and has cerebral palsy ranks much lower on the list.

As he ambles down a long hospital hallway, smiling with every step and practically daring you to do the same, it can be pretty easy to forget that this wasn't supposed to happen. Mateo Arcos was never supposed to walk.

Your brain isn't like your arm. You can’t see it or touch it. It’s not really tangible, which means that we rarely spend time thinking about the thing that makes us think, unless we have to. This is what those who experience a TBI go through.

“I’m always amazed at just how strong and brave they are,” says Laura of her sons Collin, 7, and Simon, 4. These sweet and exuberant brothers both received a diagnosis of hydrocephalus at age 1 and see Patrick Graupman, MD, for treatment.

Tall, red-haired and boisterous, it’s not a surprise to learn that Connor plays on the football team back in North Dakota, or that he’s pretty popular.

"If there is anything that I want people to understand, it’s that parents who have children who have disabilities want what any parent wants for their child."

Kiara and Keisy are twins who share a diagnosis of muscular dystrophy. Meet these sweet girls and learn how their parents, and Gillette, help them understand they're no different than other kids.

There are few things in life as overwhelming as learning your child has a disability. Accepting this and moving forward is a different process for every parent. We spoke with Gillette neuropsychologist Richard DiPrima, PsyD, and below he offers advice to help families navigate this emotional time.

Small, gregarious, brimming with boundless energy and a mischievous smile, 4-year-old Emmy Veenis is the type of kid people tend to remember. But Emmy started having headaches.

Gillette recently hosted a Facebook Live video Q&A featuring John Garcia, MD, sleep medicine specialist, about back-to-school sleep issues. Learn more and watch the discussion.

Colten's family thought he'd come down with the stomach flu. Then his illness became something much more severe. Learn how a Gillette pediatric neurologist and Colten’s rehabilitation team helped him reclaim his childhood.

A Gillette physician is cautioning those who are traveling to the Olympics in Rio to take extra care and precautions due to the Zika virus’ prevalence in the region.

The arrival of the Zika virus in the U.S. has raised awareness of the hidden risk of viruses, particularly those that cause problems for pregnant women and their babies. Zika, however, is only one of several viruses and conditions that can have an adverse outcome on a child in the womb.

A few simple tips, such as wearing a helmet and taking breaks, can help kids stay safe outside during the spring and summer months.