Ethan Johnson was diagnosed with a rare condition as an infant. His parents were told he may never walk without assistance. Now seven years old, not only does he walk, he flies out on the ice. Read Ethan's story here.

When Tammy Sinkfield-Morey began her career as a nurse at Gillette, she was the first black woman to do so. Through the years, she’s been a tireless advocate for building a more diverse, equitable and inclusive workplace at Gillette. We recently spoke with Tammy about a recent article she co-authored in Creative Nursing, and what Black History Month means to her.

Figuring out if your child has a rare disease is a concerning and challenging puzzle for parents.Two members of the Gillette team, pediatric neurologists Randal Richardson, MD, and Jamie Eskuri, MD, say finding answers and guiding families through a rare disease diagnosis and care plan is one of the most rewarding parts of their jobs.

Gillette Children's Specialty Healthcare is known worldwide for its expertise in caring for children diagnosed with rare diseases. Gillette complex care pediatrician, Arthur Beisang, MD is part of the team devoted to providing excellent care and improving the lives of children living with a rare disease.