Rett Syndrome Education Day

April 27, 2019 | 8 a.m. - 6 p.m.
10 River Park Plaza St. Paul, MN 55107 Ground floorLocation Marker

Event Details

Family involvement is critical to finding a cure! Without active participation from children and adults diagnosed with Rett syndrome, research advancements go nowhere. Families and caregivers of individuals who have Rett Syndrome are welcome to attend our Rett Education Day. A sibling/respite room will be offered. This will be a quiet space with activities offered on Saturday. The space will be supervised by non-nursing staff.

Host Hotel

Hampton Inn & Suites St. Paul Downtown
200 Seventh St. W., St. Paul, MN 55102

Special event room rate for conference attendees:
$129 – plus tax and $31 per vehicle per day parking fee
Group Name: Gillette & Midwest Rett Syndrome Foundation
Reservations must be made by April 6, 2019.
The phone number is 651-224-7400.

Booking Link:
gillettechildrens.org/booking

Contact Information

Amy Schall
Gillette Children’s Specialty Healthcare
amyschall@gillettechildrens.com
651-265-7387

Schedule

8 – 8:45 a.m.
Registration and Continental Breakfast

8:45 – 9 a.m.
Welcome – Lisa Evert

9 – 10 a.m.
Rettsyndrome.org – Clinical Trials & Funding Priorities

10 – 10:30 a.m.
University of Minnesota – Opportunities and
Research Progress

10:30 – 10:45 a.m.
Break

10:45 a.m. – 12 p.m.
“Helping Your Daughter Live Her Best Life” Physician
Panel Presentation

12 – 1 p.m.
Lunch

1 – 3:00 p.m.
Charting the Journey – Growing Into Adulthood –
Protected Tomorrows

3 – 3:15 p.m.
Break

3:15 – 4:15 p.m.
Value and Role of Rehabilitation Therapies throughout
Life Span – OT, PT and Speech Therapist Panel
Presentation

4:30 – 6 p.m. Social Hour – 6th floor Café
Snacks and cocktails hosted by the Midwest Rett
Syndrome Foundation

Faculty

Amy Authement, MD, Pediatric Rehab Medicine Specialist with Gillette Children’s Specialty Healthcare

Art Beisang, MD, Complex Care Pediatrician with Gillette Children’s Specialty Healthcare

Breanne Byiers, PhD, Research Associate with the University of Minnesota

Ann Drvol, OT

Mary Anne Ehlert, President and Founder, Protected Tomorrows

Tim Feyma, MD, Pediatric Neurologist with Gillette Children’s Specialty Healthcare

Kaylin Hildreth, MA, CCC-SLP Speech Language Pathologist with Gillette Children's Specialty Healthcare

Steve Kaminsky, PhD, Chief Science Officer with Rettsyndrome.org

Katie Michalski, MA, CCC-SLP, Speech Language Pathologist with Gillette Children's Specialty Healthcare

Molly Peterson, PT, DPT, Pediatric Physical Therapy Resident with Gillette Children's Specialty Healthcare

Frank Symons, PhD, Associate Dean for Research and Policy with the University of Minnesota