Rett Syndrome Education DayApril 27, 2019 | 8 a.m. - 6 p.m.
10 River Park Plaza St. Paul, MN 55107 Ground floor
Family involvement is critical to finding a cure! Without active participation from children and adults diagnosed with Rett syndrome, research advancements go nowhere. Families and caregivers of individuals who have Rett Syndrome are welcome to attend our Rett Education Day. A sibling/respite room will be offered. This will be a quiet space with activities offered on Saturday. The space will be supervised by non-nursing staff.
Hampton Inn & Suites St. Paul Downtown
200 Seventh St. W., St. Paul, MN 55102
Special event room rate for conference attendees:
$129 – plus tax and $31 per vehicle per day parking fee
Group Name: Gillette & Midwest Rett Syndrome Foundation
Reservations must be made by April 6, 2019.
The phone number is 651-224-7400.
Gillette Children’s Specialty Healthcare
8 – 8:45 a.m.
Registration and Continental Breakfast
8:45 – 9 a.m.
Welcome – Lisa Evert
9 – 10 a.m.
Rettsyndrome.org – Clinical Trials & Funding Priorities
10 – 10:30 a.m.
University of Minnesota – Opportunities and
10:30 – 10:45 a.m.
10:45 a.m. – 12 p.m.
“Helping Your Daughter Live Her Best Life” Physician
12 – 1 p.m.
3 – 3:15 p.m.
3:15 – 4:15 p.m.
Value and Role of Rehabilitation Therapies throughout
Life Span – OT, PT and Speech Therapist Panel
4:30 – 6 p.m. Social Hour – 6th floor Café
Snacks and cocktails hosted by the Midwest Rett
Amy Authement, MD, Pediatric Rehab Medicine Specialist with Gillette Children’s Specialty Healthcare
Art Beisang, MD, Complex Care Pediatrician with Gillette Children’s Specialty Healthcare
Breanne Byiers, PhD, Research Associate with the University of Minnesota
Ann Drvol, OT
Mary Anne Ehlert, President and Founder, Protected Tomorrows
Tim Feyma, MD, Pediatric Neurologist with Gillette Children’s Specialty Healthcare
Kaylin Hildreth, MA, CCC-SLP Speech Language Pathologist with Gillette Children's Specialty Healthcare
Steve Kaminsky, PhD, Chief Science Officer with Rettsyndrome.org
Katie Michalski, MA, CCC-SLP, Speech Language Pathologist with Gillette Children's Specialty Healthcare
Molly Peterson, PT, DPT, Pediatric Physical Therapy Resident with Gillette Children's Specialty Healthcare
Frank Symons, PhD, Associate Dean for Research and Policy with the University of Minnesota