A tethered spinal cord occurs when the spinal cord is pulled down and is stuck or attached to the base of the spine’s surrounding tissue. This prevents the spinal cord from moving freely in the spinal canal as it normally would. If the spinal cord is tethered, it will stretch like a rubber band in response to the restriction. This pressure may cause pain and permanent damage to the spinal tissue and nerves if left untreated.
What are Tethered Spinal Cord Symptoms?
Initial tethered spinal cord symptoms in children may be visible on the lower back. The symptoms may include:
- A patch of discolored skin
- A lesion or wound
- A patch of hair
- A deep dimple – usually seen with other signs and symptoms
- A fatty mass
Other common tethered spinal cord symptoms in children vary, and may include:
- Leg and back pain
- Increased muscle spasms
- Numbness or weakness in the feet or legs
- Deformities in feet (like high arches or curled toes)
- Changes with, or trouble with bladder and bowel function
- Abnormal spine curvature (scoliosis)
If your child has tethered spinal cord symptoms, seeking a diagnosis and treatment can help to avoid the possibility of lasting nerve damage. In some cases, children may not show symptoms and therefore will not require treatment.
What Causes Tethered Spinal Cord?
Children can have tethered spinal cords for many reasons. The condition may be present at birth, or it can be acquired later in life. Most often, children who have myelomeningocele, a type of birth defect, also have tethered cord syndrome. However, there are still many other causes; scoliosis and spina bifida are also linked heavily to this condition. Over 40% of children with spina bifida will undergo surgery to untether their spinal cord in their lifetime.
Other causes for tethered cord syndrome may include:
- Dermal Sinus tract – a small abnormal tract, going from the skin into the spinal canal (rare congenital disability)
- Diastematomyelia – a split spinal cord
- Thickened/tight filum terminale – the base of the spinal cord is held down more tightly than normal
- Lipoma – a benign, fatty growth
- A history of spinal trauma, injury, or surgery
Diagnosing a Tethered Spinal Cord
If you believe your child may have a tethered spinal cord, there are tests to diagnose the syndrome and its severity. The following tests may be used to determine a diagnosis:
Gillette Children’s is highly skilled at evaluating the condition and guiding patients through the treatment process. Your child’s symptoms and test results will be examined closely by a neurosurgeon before determining if tethered spinal cord release surgery is necessary. If surgery is the best option, our team of surgeons will tailor the operation to fit your child’s exact needs.
How is a tethered spinal cord treated?
Although medicine cannot treat tethered cord syndrome, it may help to reduce muscle stiffness or relieve your child from any pain caused by the spine. In order to treat a tethered spinal cord, tethered spinal cord release surgery is often used. During the procedure, the neurosurgeon makes a small opening on the back of the spine. From that opening, the filum terminale, or the band of tissue at the base of the spinal cord, is cut to release the spinal cord so that it can move freely.
If you are questioning how long tethered spinal cord surgery takes, it is a rather short procedure. Not only is it quick, but it is also low risk, and only takes about a week to fully recover. Many children who undergo the surgery report an improvement of pain, weakness, and tingling.
Although tethered spinal cord surgery prevents symptoms from getting worse, it is important to keep in mind that it may not be able to reverse the damage that’s already been done. For instance, recovery for things such as muscle loss and bladder control can vary for everyone. However, the majority of patients do very well with surgery and their level of function improves. Note that the spinal cord does have the ability to re-tether after surgery, so for this reason, follow-up care after surgery is important.
Gillette kids fuel our mission. You provide the spark. Donate today.
Consider a career with us. Make a difference in the lives of children with complex medical conditions.
Request an appointment to connect with Gillette providers.
Do these symptoms sound familiar? Our 30-minute consult appointment could help get answers.